Wednesday, April 29, 2009
Another Most Embarrassing Moment... Courtesy of ME
Important but not embarrassing update interruption! Yesterday was a VERY big day. Sarah has a diagnosis. Hallelujah! We now know she has a twelve-syllable autoimmune and auto inflammatory condition that is exceedingly rare (one in a million: I always have said it and now it's medically true) but not as scary as some diseases the doctors flirted with and even name-dropped to similar effect as, oh, a visit the Dread Pirate Hemophilia would have on a ship of weary and perpetually seasick immigrants.
In defense of our team of specialists, I must say that Sarah's other known genetic anemia conditions somewhat obscured their view. Also in their defense I must add that they had to consult Harvard. If you want to feel special, and I guess in a good way, have your state's best pediatric disease specialists send all your images and labwork across the country to a place covered with ivy and high IQs.
In fact our favorite doctor on the team attempted to call us yesterday afternoon but hung up in the middle of the first ring from nerves and had to call back later. I love her because she admitted this. Sarah loves her because she has Wyandott chickens. We all have our reasons.
The worst part 'bout Sarah's diagnosis is that she may have periods of "moderate-to-intense" pain from benign bone lesions interspersed with unpredictable but long remissions. The best part about this disease is that it goes away in puberty. Can anyone say SILVER LINING?
Okay, now back to your regularly scheduled vicarious embarrassment.
After months of doctor, lab and imaging appointments for Sarah, yesterday was for some reason my turn. I had a long-scheduled mole check and a piggybacking knee injury to follow up on. Hey, oops, that made it sound like I hurt my knee in a piggyback incident. What I actually meant was that I had the mole appointment but hurt my knee (yeah, yeah, another joint bites the dust) and so snuck it in under the scheduler's radar. And after months and months of juggling to find someone to watch the baby and/or Grace and Madeleine while Sarah and I memorized eight-year-old copies of Golf Magazine in interchangeably plastic waiting rooms, I just couldn't find anyone to watch the baby for my mole appointment.
It was mid-afternoon. I left Madeleine and Grace glued to the Webkinz site at my husband's office. I took the baby, because she's not so much into the computer. Give her time. I took Sarah, because this is my family doctor. The doctor who's known us for years. Who lives for my kids' visits (alright, that might be overstating it, but I kinda believe him when he says so). Who kindly looked aside in my most recent [if you're only counting incidents at doctors' offices anyway] wardrobe malfunction.
Sarah and Laura and I went through Dutch Brothers. Don't tell their sisters. We bought: a split-shot mocha (two shots caffeinated, two unleaded, steamy dreamy bittersweet chocolate milk = heaven in the cup holder), a blackberry Italian soda (Sarah's treat of choice) and a whole milk, straight up (Laura needs the extra fat for her brain cells I'm told).
I am getting to the most embarrassing moment.
Usually I try to pick up an Irish cream latte for my doctor's nurse. This is one way we remain the favorites. But yesterday I forgot. Because I'm clearly not invested enough in the process. Or else because I wasn't sure I could carry my mocha and hold Laura's slippery chubby fingers adequately in the parking lot (notice the order in which I sadly described the priority there) if I was also carrying a latte for the nurse.
My doctor doesn't drink coffee. Because he's superhuman, that's why.
His nurse sweetly overlooked my lack of gifts and oohed and aahed over Laura's chubby legs in a Lulu dress just made for chubby baby legs. Sarah did the Highlights puzzles in her head because it annoys her when there are marks in magazines and she can't contribute to the madness.
We waited a while. Don't you always?
We waited a while longer. The natives were restless. I let Laura climb around on the exam table. (Foreshadowing alert.)
The nurse poked her head in to say the big chief was held up on a phone call.
"We're fine!" After all, I am adept at juggling four children. How could a mere two, one of whom is buried in books, be too much for me?
Twenty minutes later Laura knew every no-no in that exam room by name. She could climb up onto the exam table and shimmy down, hanging from her fingers while her toes barely barely touched the step and her tummy provided friction for a slower descent. It was an art form, a gymnastic toddler treat.
Finally! The doctor was in!
He greeted us all with hugs. I took my hand off Laura's back to shake his, basking in the glow of being called once again his favorite family. Prolly he says that to all the farm mamas, but I just don't wanna know.
Of course the very moment I wasn't looking, the very moment I was feeling all uberproud of my cute little brood, THAT was the moment Laura did a FREE FALL from the top of the exam table onto the top of her cute little ponytail. Her adorable little Lulu of a dress flung up to reveal the matching bloomers and cover her eyes.
First the clunk of baby hitting floor. Then the horrible silence of a child who's about to scream bloody murder ("Wait. Wait. My mother was holding on to me a minute ago!").
Then, of course, the screaming did commence. And it did us proud.
The doctor elbowed me aside to pick her up. I'm not kidding. He even apologized later. "I didn't mean to elbow you in the teeth."
Well, I didn't mean to allow for the brain damage. ("All of her kids are really cute, but that smallest one? A little off.")
Sarah (ever quick-thinking) ran a Dixie cup of water and immediately distracted Laura from the goose egg growing on her head. Meanwhile I just collected my pride in another Dixie cup and remembered that pride always goes before... what?
I think we're either (a) finding a new doctor or (b) bringing a lot more lattes to buy some nursely silence. Because at this point they've seen my nursing bras and they've avowed their love for my children, I think it's option b. I think.
Friday, April 24, 2009
Around the Homestead
The first sun tea of the year. There oughta be a parade. Come to think of it, there was: A parade of my children (with neighboring farm kids, of course) while I kicked back in that there Adirondack chair and poured.
My all-time favorite wildflower. Anyone know this plant? My brother and I used to pick it for my mom in the woods where I grew up. I was so happy when we discovered it in my new shade garden spot. It's deep under the native rhodies and is sort of a rangy climbing bush. The hummingbirds love it.
A few seed packets laid out for this past week's planting festival. I have a new favorite guilty indulgence... "seed balls." Little clay spheres filled with seeds. Throw them out in the pasture, in the corner of the garden, in a 12-inch pot, keep watered (or the squirrels will take off with them!), and watch them bloom.
Tuesday, April 21, 2009
Today, Peas and Potatoes...
Today I planted 40 red and Yukon Gold potatoes in hills (due to continuing internal debate on the straw bale method), 32 string beans on one tepee. I am planning five tepees total but I'm just worn out this afternoon. The weeding! The stooping! The watering in! The hot sun! And let's not forget the children who wanted to be fed and bathed!
All two-thousand-plus peas (I still cannot get over that number) are up (although I haven't strictly counted the sprouts) and reaching for their trellises. I also put in five tomato plants today. Two yellow pear tomatoes because my kids can't get enough of those, and three heirloom multipurpose tomatoes for sauce, sandwiches and stewing. Seriously. I need some more tomato plants.
Madeleine and I planted turnips, beets, radishes and carrots yesterday in a bed that we hand-turned to add sand. Okay, to be truthful, my husband turned it first. But we finessed it.
I have heard that gardening is better than therapy (not incidentally, I've heard the same about blogging). I'm not sure though. I never got a sunburn while visiting a therapist.
And what do you think I made for dinner after all that organic dirt-turning and seed-flinging? Spam and eggs. I kid you not. I marched us all inside shortly before sundown and found a can of Spam that a friend gave us in a care package. The kids were very excited about this care package because it was chock full of grocery store convenience foods that I never, ever buy.
"Mom? What's Hamburger Helper?"
"Mom? Can we open the Sugar Snaps?"
"MOM! There's carrot cake in a box and FROSTING IN A CAN!"
"Mom? Does your friend love us more than you do?"
And then of course there's my husband. He spent the first four years of our marriage trying to detect whether I'd snuck tofu into (you fill in the blank). I had to call him at work today to tell him about the basket full of goodies. His response was pure joy. "Welcome to the other side, Miriam. Heh, heh, heh."
I don't think I'm all that radical, actually, in our food choices. I think I'm pretty mainstream. I think most of America is on the organic bandwagon. I think the nation's financial situation has brought more gardeners out of the closet, so to speak. And futhermore, if you are still with me on what I think, I think ice cream is best if it's just cream and sugar. Frozen.
But this care package -- bought with love by a friend who knows how hard it is for me to take a trip to the grocery store these days -- this care package just made me feel like a dreadlock mama. Honestly, if you do wear dreadlocks, I'm cool with that. But I shower every day and I usually use Lancome and Clinique products without checking whether there's a sticker about animal cruelty. I breastfed all my babies, but I stopped before they could ask for it in words. Again, if you're nursing your kindergartener, okay, then. I cook mostly organic and I bake all my own bread and we buy fresh pressure-pasteurized milk from our neighbor and then make our own butter and yogurt and sour cream and soft cheeses. It doesn't even tire me out anymore, all this homestead-type fussing about. What does tire me out is finding someone to watch four children while I go to town for things I can't buy in the country. Which brings me to the Spam.
The Spam? SO. INCREDIBLY. GOOD.
First I had to figure out how to get it open. I didn't understand the pop-top-tab-thingamajig so I accidentally broke it off. Then I had to finagle the can opener to open a rectangular can. Are you seeing yet why butchering my own pig (or whichever meat Spam approximates) would have been simpler for me?
Finally I pried the box/can open and then I fried (don't even bother to call it saute') the meat in some olive oil in a heavy cast iron pan. Then I added some mushrooms and tiny chopped-up brocolli. I beat half a dozen eggs and then folded in some heavy cream and shredded sharp cheddar cheese before pouring the whole mess over the fried Spam and mushrooms.
Um. Yum.
Um. Can anyone send me a case of this stuff?
Friday, April 17, 2009
Garden Roundup (not the weed killer... the tell-all!)
My windowsill geraniums are blooming and almost ready to move to the great outdoors.
My second round of peas is in the ground and poking ever so cautiously through the mulch, on the lookout for hungry renegade hens. I killed no pea-shoot-eating chickens after the last garden disaster... and I am proud of that fact. Instead of seeking revenge, I got busy and I risked my healing hip and a ridiculous new knee injury to plant a couple thousand more peas. And I must say, it is truly more than two thousand little peas I put into the ground in hopes of 30 to 60 pounds of harvest to freeze. My book said it would take that many to feed a family of four. Now, we are a family of six, but I thought to myself (rationalized is more like it) that the girls don't eat as much as some older children. And I seriously couldn't plant any more.
Thursday, April 16, 2009
Spring Cleaning, With Fur
The maples are flowering. I hope the photo doesn't send you any allergens.
And then a ride. I can't bring myself (still) to photograph the girls riding. But trust me, Two Spot and Madeleine shared a nice uneventful ride. She wore her helmet, as always. Dolly tried her best to distract us and get the attention, as every Shetland should. But Two Spot remained fully focused on his 60-pound charge as though the long workless winter was of no consequence to his perfect manners. He even used his gentlemanly good tricks to bow down for the princess to dismount. Manoman I love that horse.
Also my parents had a talent for choosing what are known as "bomb-proof" horses. My girlfriends and I would lie on horseback in the summer sunshine, completely without saddles or bridles or a care in the world. I remember clearly the way my pure black Arabian mare radiated the sun's heat back at me as I read book after book with my head rested on her rump, one arm flung across my forehead for the glare, the other arm holding my book aloft.
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And stick around to clean up the brushes.
Wednesday, April 15, 2009
Monday, April 13, 2009
Thursday, April 9, 2009
Growing (Exponentially)
For years we had a couple of bunnies in a cute little three-bay hutch.Somehow a few of them ended up here. I think it's true what they say about rabbits.
Wednesday, April 8, 2009
Growing (By The Minute)
It's great to be 5.
It's great to be 5.
Against direct orders, they continue to grow and change and become these amazing people I didn't ever imagine when I gazed into their baby faces.
Tuesday, April 7, 2009
Growing (A Garden While Trying Not To Crockpot Your Hens)
Scratched to oblivion by the suddenly not-so-cute chickens while I ran away to the coast for a weekend.
What's with me and running away anyways? Should be apparent by now that the causes of my flight response will STILL BE THERE when I return.
Ah, well. It's not too late to plant another couple thousand pea seeds. It's just that I was feeling so together about the spring garden timeline. It was my momentary though ill-advised foray into planning ahead. And we all know where that leads. To crushing disappointment and more scrambling to catch up, that's where.
Meanwhile, back at the farm:
Sarah is a bit more energetic after being on prednisone and (perhaps more relevantly) receiving visits from her much-loved grandma, auntie and cousin all last week. We are glad she's feeling better while we're waiting for two more cultures to grow in a mysterious research lab at a highly respected children's hospital. That sounds like fun. What if you were the lab personnel? "Let's go weave a replica of the Sistine Chapel's ceiling out of recycled grocery sacks... might as well since the cultures are growing."
We released the pullets, our two surviving adorable Americauna chicks who are now the chicken equivalent of stinky teenagers, into the big girls' house. The hens completely ignore their new little friends, as we should expect from respectable dowagers. The rooster, on the other hand, thinks it's his job to keep the pullets in the henhouse. He gets VERY bent out of shape when they want to venture into the chicken yard unattended. Thus the chickens were let to scramble through the kitchen garden while I was away. Thus the death of my pea starts. More depression.
My goal of completing a month of Nablopomo is miserably failed before it's half (a quarter?) over. I did take my laptop with me this weekend but didn't crack it except to watch the first half of Nights in Rodanthe. I had to fall asleep halfway through, now didn't I?
My other goal of completing the girls' Easter dresses is similarly halted by my now-familiar pattern of overflowing optimism and creative splurge followed by frustration centered around a lack of planning. Who knew hand smocking would be this hard? Suddenly the exorbitant prices on those boutique babies are seeming rather reasonable (and by "boutique babies" I mean of course the dresses -- I know of no boutique where one can buy a baby and if I did I may never have suffered through the ultimate creative splurge-creation panic cycle of pregnancy and childbirth).
Today my goal is small. I will strive to make no more bastard verbs. Reference title and the awkward "Trying Not To Crockpot Your Hens." I'll try. Not to cook them, and not to wrangle any more words into positions they never deserved.
Friday, April 3, 2009
Growing (Safely)
Thursday, April 2, 2009
Growing (A Pair)
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Yesterday I was crude... and today it may seem the Suite headline is a little... um... vulgar. It's exactly that sort of metaphor that causes me to get secretly giddy with the naughtiness of it all.
While it is absolutely true that I need to be nicer to myself, it is also true (in my current estimation of things... and since I have no other perspective but my own, it's apparently true) -- it is also true today that I need to be a bit meaner to other people.
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And although my husband hates and otherwise loathes the turn of phrase, in my late 30s I am determined to "grow a set," "get a pair" and in general get a bit tougher.
Is it any coincidence that my first apparently unrelated photo (are there any other kinds of pictures on this here blog?) is of my boots headed DOWN the stairs?.
Just in case that was too vague, I will attempt to clarify: I am making a reference to my gutter humor and accompanying attempts to "grow a pair" and where it might land me. Somewhere on a lower floor than heaven, you might say.
Believe me when I tell you I have the boots that're made for walking.
And the boots that're made for mucking the (a-hem) inevitable stuff of life.
I have so many boots that it might be embarassing. Yesterday I took a quick tour around my farmhouse and found a few random pairs in the odd reading chair and by the back door and under my bed and even some in the closet.
There are yet more boots packed for my weekend getaway with the girls. I had to pack my vintage Capezios because they have seen me through motorcycle rides with bad boys and campus walks with other good girls trying to look like bad news. I had to pack my red Dexters because they are so over-the-top sassy with a prairie skirt and a peasant blouse that it makes me feel as though I'm that confident too. Who could be mousy in a pair of high-heeled red cowgirl boots? Not me anyway.Or not.
Wednesday, April 1, 2009
Growing (Up)



Tuesday, March 31, 2009
Love Bug and Other Random Springtime Love
Monday, March 30, 2009
Toys 'R' Us or Spring Cleaning, Suite Style

Saturday, March 28, 2009
Wednesday, March 25, 2009
A Little Souffle
After three weeks (or so -- I've lost track in that particular way of long vacations or ongoing insomnias) of near-daily doctor visits and too-frequent ER dashes, we still have no diagnosis.
We have an old-fashioned quarantine.
Oh, they're not calling it quarantine. There's the lack of a sign on our door. And there's a serious lack of slowing in the visits and phone calls such as you would expect in a true quarantine situation.
Not that I have any knowledge of quarantine protocol that goes beyond what you could learn in a movie (by that name, I think? Quarantine?)... anywho, I don't know the first thing about quarantine.
But I do know Sarah's on steroids for their anti-inflammatory effect, and I know we're not going to chess class, or archaeology, or the zoo, or anywhere else but stir crazy for two weeks until her next round of tests.
Sarah folds over on herself. Sarah is as flexible as a gymnast, a ballerina, a switch-hit debate star. This flexibility is her strength and her signature and a great reason in a long list of reasons to love her.
But right now Sarah doubles over like a crepe, golden but much more fragile than your workaday pancake. She folds in on herself as a morning glory does at dusk, exhausted in retreat from the beauty of the day. She's a souffle', sensitive to temperature and sound and the moods of those around her.
She's been ultrasounded (now that's a funny made-up verb) and X-Rayed and EKG'd and poked and prodded and annoyed as all get out by (apparently) falsely cheerful RNs. Her blood's been drawn too many times to count and I want to shout at the medical profession to please plan accordingly. "How much blood can the anemic girl spare?" Katie wanted to know. I want to know too.
Staying home for two weeks sounds restful. But now that I've had a day of it? One day? I'm exhausted. I am strung out like a strand of costume pearls on thin elastic. I am run through a wringer washer and hung to dry with the wrinkles getting crackly in the dry heat of a desert day. I am possibly just now sifting through the half-dozen doctors' ideas and concerns and oft-conflicting recommendations. Did we really just do all of that? Did I remain standing for that? Did we all?
Why didn't someone warn me to sit down?
In these past few weeks I have given so much thought and prayer to the concept of chronic illness and disease. The need to remain cheerful and calm for my children and myself is prime, but the inner dread and worry that I feel is somehow projected outward to the thousands of families who face debilating and life-threatening problems. How does one march forward? How does one maintain grace and hope?
I want to know.
Oh, and this brings me to another point. Everyone else wants to know as well. Everyone wants to find out what's causing Sarah to be so sick. The doctors are working very hard, following thin leads, trying to alleviate her symptoms while we're at it. Our families are also very supportive. But it's maddening. It's easy to fall into the role of armchair quarterback, backseat driver, Doogie Howser, M.D. Every medical site on the Internet has been attacked by Sarah's extended family, every symptom searched, every known illness cross-referenced. There is an answer, and I am confident it will be found soon. I'm frustrated though. I'm ready for her to be better. A miraculous healing would be fine by us.
As soon as I tucked the girls in bed tonight I went looking for something to read. And Barb did not disappoint! I am so grateful for my front-loading washing machine and my stocked freezer and my pea plants peeking out of the soil. I'm so grateful for modern medicine and for the Internet (although sometimes the Information Age is overwhelming).
Wednesday, March 18, 2009
Again with the Roller Coaster
You heard right.
It's the sort of heavenly-chorus-of-voices day that features a perfect combination of 58 degrees, impossibly Jello-esque blue skies dotted with marshmallow puff clouds. It kinda makes you hungry for a church potluck. Kinda sorta.
Now that was unfair.
Our church potlucks are unbelievable. They give church potlucks a good name. My kids ask EVERY Sunday if we can stay for a potluck. Maybe the ladies of our church should open a Sunday-only restaurant. Even if Jello isn't one of your major food groups... I'm just sayin'.
The best thing about most church potlucks is that you don't have to cook. Well, you have to cook a large quantity of one item. And you have to plan ahead-- already we are seeing why it might be a problem for me.
This week it has proven impossible to plan anything. Or possibly I should say that it has proven fruitless to plan. Pointless. I love lists as much as the next girl. To-do lists. Honey-do lists. Long-range goal lists. In fact I like lists so well that when I am pregnant I don't nest, I list. (That's my husband's joke, not mine. Ba-dum-dum.)
So this week I have (had) a lot of plans. Doctor appointments, accountant and attorney appointments, work, writing (oh, the certifiably important but the least urgent and therefore the first to go), parenting (this list is in no particular order, obviously).
All those plans? To the place handbaskets are rumored to travel with regularity. One-way ticket.
But it's a beautiful day! I think I'll plant a few more peas as soon as I can check a few more things off my list.
Saturday, March 14, 2009
Apropos of... Spring

Thursday, March 12, 2009
Surfin' Safari ... Farm Style
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We visited a nearby wild animal park for a safari adventure, then enjoyed a picnic of sorts in the car while we waited for the sun to warm up the not-quite-spring air. After lunch we walked through the small animal farm and zoo exhibits. It was exactly the getaway we all needed.

Look over there!

Shall we look through the guide to identify the creatures or just marvel at them?


We saw these signs everywhere, but no one took them literally until an apparently benign little duck took a chunk out of Carolyn's hand.

The monkey was on the lookout. But he was behind glass. We learned that it's been proven that primates can plan ahead. I guess they're one up on me already.

I know y'all were craving a picture of Laura's toes. The girl will not leave her socks and shoes on. And don't get me started on her hair bows.

















